Monday, October 15, 2012

Big Victory



I can happily announce that we've won one fight , and that was getting back to Cincinnati.
Phew!
I am so happy you have no idea. Our urology nurse told us " See you in a few weeks."  

So we have to take the victories as they come and celebrate.  Though I will say insurance is NOT budging with the other medical equipment we need.
So , again , just getting to Cincinnati is a victory in itself.   Cincinnati is where we need to be with Maggie.

We are so thankful that we at least have this right now and we pray everything else will eventually work itself and come together.

Now with that said we have to focus on raising the money for our trip as its going to be longer than originally planned. Originally we were only going to have to stay for 3 days, but when we last talked with our urology nurse , she mentioned a cystoscopy in there. Sure enough a few days later when they send the itinerary we are going to be there until November 5th.  So we'll be in Cincinnati from October 31st to November 5th now.
So we have to focus on getting there and with everyone's kind donations this will help.  As this will be our third trip to Cincinnati this year, and we are most sure its not going to be the last one there yet either.

I know if I had a wish list , I would wish for :
Hotels to be free
Gas to be free
Medical equipment to be free
and food to be free.
And we would never have to ask another living soul for financial help ever again. Sadly that's not the case, our state doesn't pay for these things. I know some states do for those with special needs kids. We can get reimbursed,  but we get no where near what we pay into it back for gas or hotel , and you also need the money to spend to get it reimbursed   

Heck, I've even met well to do families that have to fund raise to get their children to Cincinnati ,or other hospitals for that fact. So we are definitely not at all the only ones that have to do this. Medical travel is not by any means cheap. Even when you get hospital discounts. Those days that you are there in a hotel add up fast, and if your a family with a special needs child and your reading this , you'll know EXACTLY what I'm talking about.

Know that all donations no matter how big or how small will always be appreciated. This all goes to Maggie's care and it helps lifts one of many burdens we have.

Thank you from the depths of our hearts

--- The Reed Family

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