Tuesday, October 30, 2012

Super Storm Sandy

We have managed to stay safe and the only aftermath of the storm we suffered was the fact that our power went out for quite some time. We are very thankful all we had to weather was wind, rain and a power outage. Knowing that there are millions of people out there right now without power, or even a home to go back to. 
I honestly don't think we'll ever forget this storm for as long as we live. The wind just howled like if we were close to Lake Erie, and our power went out due to a transformer blowing. 

Tonight we are getting ready to set out to our third trip to Cincinnati this year. We know that when we come back that Maggie maybe having to face another surgery to correct the problem we are having with her bladder and Mitrofanoff. 
Its hard going not knowing what the next step is  going to be. We have no idea if they want to up her medication more, or what her tests are going to show. All we know is that we're just not having any luck accessing her Mitrofanoff. I maybe get into it successfully once or twice a day, more so once a day than anything else. 

So we pray that we have a plan, that we'll know what is going on inside Maggie, and that we will even be able to continue to go to Cincinnati. 

As it stands now our fundraising is going very slowly. I will say that I'm not very good at this fundraising thing , nor am I a fan of having to do it. But as long as we don't meet our goal, I'll keep beating the drum until we do. 
I know I'm kind of out of ideas, and I wish I knew how to get this out more but we are honestly trying our very best with the situation that we have been given. 
We would love nothing more than to have Maggie be a healthy little girl. We'd love to have nothing more than just just deal with the normal kid ick, we'd love nothing more than not to have to travel anymore , we'd love nothing more than to not have to fight with insurance companies to be able to go where we need to go , and get what we need to get for Maggie.  We'd just love to live our life as a family for a while and not to have to worry about any of this at all. 

In the same breath, it is what it is. I need ideas, we need support. We need people to share this to the ends of the earth so we can one day say " We don't need this page anymore."  We need prayer too so that something good happens for Maggie. 

Until then, I'll beat our drum and ask for your help. Your help in donating as little or as much as you can. We are greatful for the help we have had from some that want to help us reach our goal. So that we don't have to worry about medical supplies that our insurance doesn't cover, and helping us to get to Cincinnati for Maggie's medical trips. 
Know that we are thankful for everything,  We covet your prayers as we walk the next step in Maggie's journey. 

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